Friday, September 30, 2011

Food Delivery

Lobster delivery from my friend Joey!

Thursday, September 29, 2011

And it gets harder...

I'm having a lot of trouble gaining the five lbs back that I've lost and it's partly my own fault because I am so tired of eating, too tired to cook, feeling not that great and so on.  My lungs have really taken a hit over the last 2 weeks and I think I'm in the place I was before my first transplant.  This is how sick I remember being I think, where basically all I could do was lay on a couch all day because my lungs are just working so so so hard to do anything and sometimes even thinking of doing something gives my lungs trouble - seriously.  So last time I got a false alarm call in October and that was great for all of us because we knew that meant we were at least moving in the right direction and real lungs were not far off! And then I got the real call November 12th.  So I can only hope this time things happen the same way.  Please pray that lungs come, I guess when they are meant to, and everything is as it should be. 


Wednesday, September 28, 2011

Monday, September 26, 2011


I am starting a lung pool.  $20 a day, and only one person can have a day
(will update as people pick days):
*the person closest to the date wins, if not on the date

I'm still here!!

I know it's been a little bit since I posted, I am still here, I am trying to no avail to gain some weight back after my last doctors appointment...It's a little bit of a viscous cycle really because the tinier I get the less I feel like doing anything that involves using energy (i.e. eating) and the less I eat the smaller I get! I've been cooking a few things to try and help (those will come in later posts.)  Other than that nothing new is going on, I'm slowly starting to be able to do less and less.  Lungs cannot come soon enough...

Tuesday, September 20, 2011

I love fall

Fall is a great season for breathing! But I also love fall for the colors, the apples, the cider, the pumpkins, the sweaters, and boots, and crisp air.  To get in the spirit my nails are sporting a fall look

Monday, September 19, 2011

Lasagna Cups

I got this idea over at Framed Cooks to layer little lasagnas in a muffin tin. You do everything the same way you would a real size lasagna but instead you use Wonton wrappers (found at any grocery store) instead of lasagna noodles (and to make it easier you cut them into circles, cut a stack of them at a time) Spray the tin with Pam, and cook for about 30 minutes. 

Saturday, September 17, 2011


I am really coveting this bag.  It's Dolce & Gabanna and it's like $2220! Gah! But it make my heart do a little pitter patter, it does it does

Thursday, September 15, 2011


I just want to send a shout out thanks to all of you that think of me so often.  I'm really lucky especially on check up weeks to have so many people think of me, and text me and email me and everything.  I'm really really lucky to have so many caring thoughtful people in my life, and a really great support group, and a few very special BFFs that are always thinking of me! And I know even people that I haven't seen in forever keep me in their thoughts and I really cannot tell you have much it means to me.  I would never be able to express it, seriously.  It keeps me going...

Wednesday, September 14, 2011

Check up week

I had a doctor visit yesterday in ny and not that greatest news ever....I lost FIVE POUNDS.  Yeah, FIVE POUNDS.  That's like A LOT OF weight, and under the agreed weight we have set before I need to get a feeding tube.  So, for the next 4 weeks it's going to be eating eating eating, or the dreaded feeding tube is going to happen.  Maybe to make it more fun I'll post on random days lists of things I eat. Other than that, my lung function is down to 19%-20%, and last week they did 4 transplants, so things seem to be moving again, they had a lull for awhile! This is good news!

Friday, September 9, 2011

Thursday, September 8, 2011

Wednesday, September 7, 2011

Things I bought

When my lungs are particularly crappy I tend to buy things online (to make me feel better....) Last week I had one of those weeks and had lots of packages came which included these:

Friday, September 2, 2011


So we're having a big party Saturday so I have been MIA! There are big preparations for this, so actually I kind of hope the call for lungs comes on Saturday haha! How did all of you survive the storm?