Covet

I am really coveting this bag.  It's Dolce & Gabanna and it's like $2220! Gah! But it make my heart do a little pitter patter, it does it does

Thanks

I just want to send a shout out thanks to all of you that think of me so often.  I'm really lucky especially on check up weeks to have so many people think of me, and text me and email me and everything.  I'm really really lucky to have so many caring thoughtful people in my life, and a really great support group, and a few very special BFFs that are always thinking of me! And I know even people that I haven't seen in forever keep me in their thoughts and I really cannot tell you have much it means to me.  I would never be able to express it, seriously.  It keeps me going...

Check up week

I had a doctor visit yesterday in ny and not that greatest news ever....I lost FIVE POUNDS.  Yeah, FIVE POUNDS.  That's like A LOT OF weight, and under the agreed weight we have set before I need to get a feeding tube.  So, for the next 4 weeks it's going to be eating eating eating, or the dreaded feeding tube is going to happen.  Maybe to make it more fun I'll post on random days lists of things I eat. Other than that, my lung function is down to 19%-20%, and last week they did 4 transplants, so things seem to be moving again, they had a lull for awhile! This is good news!

Pig Party

More things I bought

Things I bought

When my lungs are particularly crappy I tend to buy things online (to make me feel better....) Last week I had one of those weeks and had lots of packages came which included these:

Hiiii

So we're having a big party Saturday so I have been MIA! There are big preparations for this, so actually I kind of hope the call for lungs comes on Saturday haha! How did all of you survive the storm?